proactive
Enjoying a drop of red.
Rover V8 in a Marina?It was actually easy enough to get a Rover V8 into a Marina.
Probably best to leave the vinyl seats in, though...
Waste of a Marina.
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Mundane facts about your day: Part Deux.
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Waste of a Marina.
staffordjas
Well-Known Forumite
In a bit of a dilema. 
Hubby waiting for a pace maker , but meds dosage needs to be increased for it to happen and blood pressure too low to increase them. Phone call from cardiologist Staff nurse today.....would hubby be prepared to do a trial on a new heart device .
Half the trial patients get the proper device ,half get just a heart monitoring device . But massive 1/6 and 1/30 risks in both of serious complications.... (As they are re-imbursing parking etc makes me suspicious it's rather dangerous)
I don't like the sound of it , and would rather hang on for the pace maker eventually .
Ok , if he's fitted with something which can save his heart and life fair enough , worth the risk.
But if fitted with the placebo , which also has risk of stroke or death , then I don't reckon worth the risk....
Won't know which one he'll be operated on to implant . Cardiologist meeting him next wednesday to discuss.
What are your thought folks ? This is link they sent to see procedure...
www.explainmyprocedure.com
Hubby waiting for a pace maker , but meds dosage needs to be increased for it to happen and blood pressure too low to increase them. Phone call from cardiologist Staff nurse today.....would hubby be prepared to do a trial on a new heart device .Half the trial patients get the proper device ,half get just a heart monitoring device . But massive 1/6 and 1/30 risks in both of serious complications.... (As they are re-imbursing parking etc makes me suspicious it's rather dangerous)
I don't like the sound of it , and would rather hang on for the pace maker eventually .
Ok , if he's fitted with something which can save his heart and life fair enough , worth the risk.
But if fitted with the placebo , which also has risk of stroke or death , then I don't reckon worth the risk....
Won't know which one he'll be operated on to implant . Cardiologist meeting him next wednesday to discuss.
What are your thought folks ? This is link they sent to see procedure...
British English V2 – British Trial
www.explainmyprocedure.com
Carole
Well-Known Forumite
I’m confused about this bit @staffordjas because a placebo is a treatment that has no active properties (it could be a sugar pill) so how can it have a risk of stroke or death?
Withnail
Well-Known Forumite
Dude - the risks associated with the 'placebo' are minimal (bleeding, infection, all stuff that is a risk from any surgical intervention - and all just sub-cutaneous), and are more like 1/200. The 'placebo' also isn't just dead weight - it will provide useful info that will help the docs keep track his heart function.
The riskier shizz is with the real thing - without looking further into it, from the link you've posted, it looks like this is already being used, but they are looking for stronger data that it is worth the risk for more general use - tbf the risks do seem high, but look to be as much associated with the surgical procedure to fit it - and any surgery of this magnitude is always potentially dangerous, regardless of what they're doing - rather than the device itself. Still, it's a big decision... do you feel lucky?
Looks like one way of knowing you got one or the other will depend on whether you end up with three scars or just one.
The riskier shizz is with the real thing - without looking further into it, from the link you've posted, it looks like this is already being used, but they are looking for stronger data that it is worth the risk for more general use - tbf the risks do seem high, but look to be as much associated with the surgical procedure to fit it - and any surgery of this magnitude is always potentially dangerous, regardless of what they're doing - rather than the device itself. Still, it's a big decision... do you feel lucky?
Looks like one way of knowing you got one or the other will depend on whether you end up with three scars or just one.
littleme
250,000th poster!
I'm guessing the risk of stroke or death, also comes with doing nothing & waiting for the pacemaker?In a bit of a dilema.
Half the trial patients get the proper device ,half get just a heart monitoring device . But massive 1/6 and 1/30 risks in both of serious complications.... (As they are re-imbursing parking etc makes me suspicious it's rather dangerous)
I don't like the sound of it , and would rather hang on for the pace maker eventually .
Ok , if he's fitted with something which can save his heart and life fair enough , worth the risk.
But if fitted with the placebo , which also has risk of stroke or death , then I don't reckon worth the risk....
Won't know which one he'll be operated on to implant . Cardiologist meeting him next wednesday to discuss.
What are your thought folks ? This is link they sent to see procedure...
British English V2 – British Trial
staffordjas
Well-Known Forumite
They still implant a recording device on the half who don't have the actual heart device fitted. Can still puncture heart and lungs etc.
Carole
Well-Known Forumite
Gosh yes, that does sound risky. I can see your dilemma.
staffordjas
Well-Known Forumite
That's what we shall be asking on Wednesday when we go. MRI scan has shown no improvement from previous one before the new meds he's been on the last few months.
The last emergency heart op he had back in 2012 was an either "operate and risk losing him, or lose him". He's been stable on the meds all those years until the GP's here started changing a few. (Stafford Cardiologist had signed him off as he was stable for so long , and the tablets he was taking were doing the job of a pace maker at the time)
staffordjas
Well-Known Forumite
Plus you won't know which device you have got , so could be risking it for no advantage .(And delaying a Pace maker being fitted)
Thehooperman
Well-Known Forumite
I know they spell things a little differently down here in Tewkesbury as in the pub sign but the ingredients of the second pie down sound a bit dodgy 
I don’t think I’d fancy one of those. With the rise in childhood obesity think of all that fat you be eating. (I bet it tastes nice though… fat is flavour)I know they spell things a little differently down here in Tewkesbury as in the pub sign but the ingredients of the second pie down sound a bit dodgy
Cue
Well-Known Forumite
This seems unusual… surely the control should be a normal pacemaker as it’s unethical to give someone who actually needs something nothing instead?
staffordjas
Well-Known Forumite
Just read some 10 pages of paperwork that's been sent through to us from Cardiologist as well. Few photos of paperwork below makes scary reading.
Still going to see cardiologist on Wednesday to ask about ways going forwards with meds and normal pacemaker that he's due to have once meds increase to right level , but both of us aren't for the trial reading all the risks involved. 1 in 6 is a hell of a gamble (especially with our luck!)
Apparently they did the same trial in Denmark with 1000 people and concluded 'The trial concluded that for patients who received an ICD , there was no difference in the likelihood of dying when compared to patients that didn't have a ICD fitted, This means that patients who were fitted tith an ICD were overall, not better off in the long term. '
Then another paragraph...What are our current practices?
Following the publication of the Danish trial ,surveys across Europe & UK have found that nearly 50% of cardiologists have changed their practices . Many doctors are deciding NOT to implant an ICD in patients with this type of heart failure, as they believe there is no overall survival benefit.
Still going to see cardiologist on Wednesday to ask about ways going forwards with meds and normal pacemaker that he's due to have once meds increase to right level , but both of us aren't for the trial reading all the risks involved. 1 in 6 is a hell of a gamble (especially with our luck!)
Apparently they did the same trial in Denmark with 1000 people and concluded 'The trial concluded that for patients who received an ICD , there was no difference in the likelihood of dying when compared to patients that didn't have a ICD fitted, This means that patients who were fitted tith an ICD were overall, not better off in the long term. '
Then another paragraph...What are our current practices?
Following the publication of the Danish trial ,surveys across Europe & UK have found that nearly 50% of cardiologists have changed their practices . Many doctors are deciding NOT to implant an ICD in patients with this type of heart failure, as they believe there is no overall survival benefit.
staffordjas
Well-Known Forumite
We always celebrate the anniversary of us first meeting , more than our actual wedding anniversary. 45 years today ....14th April 1979 .....
Got so much on our minds at the moment we both forgot it today until tonight
It was hubby who's just remembered.
He's limited to 3 pints of fluids a day with his heart condition and reached his limit already. So I'll just have to have an extra cider for him as well
Got so much on our minds at the moment we both forgot it today until tonight
It was hubby who's just remembered. He's limited to 3 pints of fluids a day with his heart condition and reached his limit already. So I'll just have to have an extra cider for him as well
proactive
Enjoying a drop of red.
A certain well-known forumite escaped?
tek-monkey
wanna see my snake?
Possibly time to wash the dog
